Sorting through the wealth of online information on Cornelia de Lange Syndrome can be a daunting task. What's worth reading, and what's a waste of time? Start with this recommended list of resources to find the information you need to understand and help your child.
On this Parenting Special Needs site
There are lots of articles on this site of interest to parents of children with Cornelia de Lange Syndrome, but these three will give you a good place to begin.
Just the facts
These reference sites give good overviews of CdLS diagnosis and treatment.
CdLS Organizations
These organizations offer information, services and support to individuals with Cornelia de Lange Syndrome and their families.
Blogs by parents
These blogs offer a personal view of raising children with CdLS.
Support groups
Connecting with another family, in an online support group or one-on-one, can be an important source of guidance in parenting your child with CdLS. Start with these three resources.
On this Parenting Special Needs site
There are lots of articles on this site of interest to parents of children with Cornelia de Lange Syndrome, but these three will give you a good place to begin.
- What Is Cornelia de Lange Syndrome?
- First Five Things to Do After Your Child Is Diagnosed With CdLS
- Preparing the School for Your Child With Cornelia de Lange Syndrome
Just the facts
These reference sites give good overviews of CdLS diagnosis and treatment.
CdLS Organizations
These organizations offer information, services and support to individuals with Cornelia de Lange Syndrome and their families.
Blogs by parents
These blogs offer a personal view of raising children with CdLS.
Support groups
Connecting with another family, in an online support group or one-on-one, can be an important source of guidance in parenting your child with CdLS. Start with these three resources.
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